Wrongful Life in the Age of CRISPR-CAS: Using the Legal Fiction of “The Conceptual Being” to Redress Wrongful Gamete Manipulation

Barbara Pfeffer Billauer J.D., M.A., Ph.D.*

Abstract

 

Virtually all ‘wrongful life’ actions (claims brought by children for pre-birth injuries) are denied. The basis for this doctrine pivots around the refusal to allow recompense for actions which cause harm, but also result in the child’s birth. We, therefore, are faced with a legal lacuna, where children suffering serious harms as a result of the latest reproductive technologies are legal orphans. This Article details the avenues of potential harm caused by modern reproductive technologies, which I call wrongful genetic manipulation (WGM), where the injured child would have no right of action. To address this void, I create a novel remedy via a legal fiction, “the conceptual being,” which would enable these children to bypass current restrictions and claim an expanded class of damages, including pain and suffering, emotional injury, and unjust enrichment.

 

              *About the author: Dr. Billauer holds academic appointments at the University of Porto, Portugal, where she is a Professor in the International Program on Bioethics, and the Institute of World Politics in Washington, D.C., where she is a research Professor of Scientific Statecraft. She has advanced degrees in law and public health and sits on the UNESCO committee currently compiling a Casebook on Bioethics. She has also edited Professor Amnon Carmi’s Casebook on Bioethics for Judges. Prior to transitioning to academia, Dr. Billauer practiced medical malpractice, toxic tort, and products liability law. The author gratefully acknowledges the advice and comments of Professors Norman A. Bailey, Yaniv Heled, and David Heyd. The author, however, bears full responsibility for the content of this Article.

 

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